Many married couples often face the question, “When are you having kids?” But for Charli Worgan and her husband Cullen, the question was often “Why?”
The couple, who reside in Sydney, are frequently in the public eye due to their unique forms of dwarfism. This attention intensified when Charli became pregnant with their first child.
After the birth of their first child, Charli decided to create a social media account to share updates on their family life. She had no idea how popular her account would become. Now, with two beautiful daughters, Charli has amassed over 300,000 followers on Instagram.
Recently, Charli shared that she was fourteen weeks pregnant with her third child. However, the announcement was bittersweet.
Each of Charli’s pregnancies has required extensive genetic testing. Medical experts have warned that if the child inherits one of Charli or Cullen’s types of dwarfism, or both, or even if the child is of average height, the results could potentially be fatal due to the genetic complexities involved.
Charli expressed her disappointment that she couldn’t celebrate the 12-week milestone of her pregnancy with her family, a common tradition among many expectant mothers.
“While most people are excited to announce their pregnancy at 12 weeks, I was preparing for a procedure called Chorionic Villus Sampling (CVS), which is similar to an amniocentesis,” Charli shared. “A large needle is inserted into my abdomen to extract a sample of the placenta to examine the embryo’s genetic makeup. This procedure carries a 2% risk of miscarriage.”
Charli and Cullen’s two daughters, Tilba, 4, and Tully, 2, each have one of the two forms of dwarfism. The couple anxiously awaited the results to determine which of the four possible outcomes their third child would face.
In a candid Instagram post, Charli broke down the possibilities: “Our child could be of average height. Our child could inherit achondroplasia and have dwarfism similar to mine. Our child could inherit geleophysic dysplasia, the same type of dwarfism Cullen has.”
She continued, “Or, our child could inherit both genetic mutations, resulting in ‘double dominant dwarfism,’ which, according to every medical expert, is fatal. If that had been the case, I would have had to make the heartbreaking decision to either terminate the pregnancy or continue and see what happens.”
Charli’s journey through each pregnancy has been a delicate balance of hope and fear, navigating the complexities of genetics with a fierce determination to bring her children into the world. Despite the challenges, her story is one of resilience, love, and the unbreakable bond of family.